January 2017

I started this group because I wanted to meet people, like me, who were struggling to feel connected to someone “in the know”.  When you find out that your child has Cerebral Palsy, you need to hear from other folks who share the feelings that you have.  Doctors and therapists don’t cut it – that’s not to say they are not supportive, simply that they can’t possibly relate to how you feel.

We all live busy lives and juggle many things – including caring for our child with CP.  So, meeting on a regular basis is practically impossible, BUT, when we are able to connect – I can’t tell you how energizing the meeting can be! Recently, I met with a family and we found out that we have so much in common.  We share feelings, thoughts, apprehensions, fears and hopes, dreams and aspirations for our children.

I still believe in that face-to-face meetings are beneficial and almost necessary, but I have adjusted to the reality that it’s not as feasible as I would like it to be.  So, I created this Facebook group in order that information can flow more easily among group members.  If you have not joined yet, please take a minute to do so.  Here is the link.

There are other CP related groups on Facebook.  Below are links to two of them.  No matter how you do it – get the support you need and don’t feel alone.  However, be mindful of a couple of things as you seek support online:

  • Be wise when posting information about your child
  • Watch out for attempts to exploit the vulnerable
  • Use caution when using chat with other members
  • Do not respond to any requests to assist other financially, no matter how heart moving that request may be